ANNUAL CANDLELIGHT “A light of the world”

NEXT APRIL 17th, LET’S DRESS IN YELLOW AND LIGHT A CANDLE FOR YOU, FOR ME AND FOR THEM. CAN WE COUNT ON YOU?

People and organizations around the world come together on April 17th of each year to commemorate World Hemophilia Day, a disease that, although classified as rare, affects more than a million people on the planet.

From Foundation Hope and Life, we commemorate this date with the Candlelight event: “A light for the world.” The annual meeting has been an opportunity to remember all those friends and family members who are no longer present because of a bleeding disorder and it is also a space to highlight and exalt those who continue to fight for a condition that makes them unique.

For 2021 we are not oblivious to the consequences of the Covid-19 pandemic and therefore we are preparing to have a virtual event in which, supported by volunteers, patients and their caregivers, pharmacists, and the entire hemophilia community, we will take the step to discuss a disease that we want to make increasingly visible.

To participate, register on: INSCRIPCIONES CANDLELIGHT

AGENDA

VIERNES 16 DE ABRIL

  • 5:30 p.m. Apertura Evento
  • 6:00 p.m. Presentación Bayer
  • 6:20 p.m. Presentación Biomatrix
  • 6:40 p.m. Presentación CSL
  • 7:00 p.m. Presentación Genentech
  • 7:20 p.m. Presentación Medexus
  • 7:40 p.m. Presentación Novo
  • 8:00 p.m. Presentación Octapharma
  • 8:20 p.m. Presentación Pfizer
  • 8:40 p.m. Presentación Takeda
  • 9:00 p.m. Cierre

 

SABADO 17 DE ABRIL  (Hora Miami)

  • 5:00 p.m.  Apertura.

 

  • 5:40 p.m. “Inclusión laboral y calidad de vida: visibilización de derechos pacientes con hemofilia”

    Adriana Murillo (Colombia) – Psicóloga, especialista en Seguridad y Salud en el trabajo, Magister en Gerencia del Talento Humano.   

 

  • 6:20 p.m. “El uso de la hinopsis en la calidad de vida de padres de un paciente con hemofilia”

    Jonathan Navarro (México) – paciente hemofílico, máster en Psicología con especialidad en hinopsis.

 

  • 7:00 p.m. “El cuidado de la palabra y nuestros pensamientos tienen el poder de construir o destruir” 

    Kristian Galindo (Colombia) – Coach profesional personal y ejecutivo, profesional en Seguridad y Salud en el Trabajo.  

 

  • 7:40 p.m. “Transforma tu ser mediante el movimiento consciente y la energía” 

    Ana Arango (Estados Unidos) – Fisioterapeuta e instructora de Yoga.   

 

  • 8:20 p.m. Vigilia a la luz de las velas.

 

  • 9:00 p.m. Cierre. 

 

This year’s event will be sponsored by:

Thank you for believing in us.

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