In most educational centers they do not have information on bleeding disorders (such as hemophilia and vWD), because they have rarely been found among their students. Be prepared and preparing the school will result in less concerns for your child’s health.
- WITH THE DOCTOR
Ask your doctor for a school letter about the care that your child requires.
2. AT SCHOOL
Meet with your school staff to explain about bleeding disorders, the child’s treatment and things your child can or can’t do. Go to the meeting accompanied by a nurse or representative of your specialized pharmacy.
- FOR THE FACTOR
Ask the school for a space in the nursing refrigerator to store at least 2 doses of factor.
- ORGANIZE A FOLDER
Give to the staff who are taking of your child a folder that includes:
- Emergency letter (emergency numbers, child information).
- Doctor’s letter with the protocol that should be followed in case of an emergency.
- FOR DAYCARE
You can request a helmet through your hemophilia treatment center. Do not forget to make your child’s unique condition known and deliver the folder with the emergency card and the doctor’s letter.
- MEDICAL ALERT
Give your son or daughter, a bracelet or a medical alert chain.
FHLUSA CAN HELP YOU WITH THE PROCEDURE TO OBTAIN IT.
- OTHER RECOMMENDATIONS
Consult and ask the School of your County the Medicine Authorization or Medical Treatment form if your child requires it. Includes medicine purchased without a prescription.
8. PLAN 504
If you live in the United States you can apply to plan 504.
What is it?
They are formal plans that schools develop to provide the support needed by children with special conditions. The objective is to eliminate obstacles and allow children to access teaching.
Families or schools can request a 504 plan through the school district 504 coordinator. The request has to be in writing. The school will then make a meeting to decide whether the child qualifies and what supports are adequate.